Thank you to everyone who donated, participated and supported our first event. Thanks to you, we raised over $7000 for SMS Awareness & Research.
EVENT INFORMATION
SMS Champions Walk-A-Thon
September 7th, 2024, 10AM-2PM
Evergreen High School (Track)
Come join us at Evergreen High School (Track) for our first annual SMS Champions Walk-A-Thon supporting PRISMS. This fun-filled day is a great opportunity to learn more about Smith-Magenis Syndrome and help us raise money and awareness for SMS.
Walk, run or just come to hang out, meet some new friends, and help us make a difference in our community. This family friendly event will feature a 1-Mile Walk, 5K Walk, food, refreshments, coffee and yard games sponsored by local vendors.
Shirts are SOLD OUT, sorry for any inconvenience.
1 Mile Commitment
Whether you’re bringing the kids, walking with friends, or enjoying a solo walk, the 1 Mile Commitment is a wonderful way to support PRISMS and stay active.
Suggested Donation $25 per person.
5K Commitment
Perfect for those looking to break a sweat, walk or run, take on a slightly bigger challenge with our 5K Commitment to support PRISMS.
Suggested Donation $25 per person.
OTHER Donations
Can’t join us for the walk but still want to make a difference? You can still donate. Every contribution counts, no matter the size. Thank you for your support!
Suggested Donation $25 per person.
On a mission to spread awareness about sms
If you are donating directly to PRISMS, please mention SMS Champions in the Special Instructions.
Hazel's story
Our journey with Hazel has led us to want to raise awareness for this syndrome. We found out about Hazel’s diagnosis on March 22nd of 2024 via MyChart. Hazel’s diagnosis consists of a deletion on chromosome 17, 17p11.2 and FLCN which is associated with Birt-Hogg-Dubé Syndrome (BHD), which is a rare disorder that affects the skin and lungs and increases the risk of certain types of tumors.
As first-time parents, you can imagine what was going through our minds: What is SMS? What is BHD? I’ve never heard of this. Wow, the internet is terrible. Is this all true? Etc., etc. Hazel has been her pediatrician’s, PT, OT, speech therapist, pulmonologist, ophthalmologist, ENT, and cardiologist’s first case of SMS. This just shows the nature of how rare and unknown this syndrome is. Since Hazel was born, she has always been in and out of hospitals due to medical problems. At every check-up, she never met any milestones at an age-appropriate time. Though the journey ahead of us is unknown regarding how Hazel’s diagnosis of SMS and BHD will affect her, we want her to look back on her life knowing that her community loves and supports her.
Despite her diagnosis, Hazel is pure joy and love and brings smiles to everyone around her. She is resilient and her strength has given us strength at times where we didn’t have any. As her parents, we want her to be proud of who she is, diagnosis and all, and that she will get to have a day that is all about celebrating just that.
Janet & Trent Standard
Frequently Asked Questions
What is SMS Champions?
SMS Champions is an event that we’ve created to raise awareness for SMS.
What is Prisms?
PRISMS is a non-profit dedicated to providing information and support to families of persons with SMS, sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS. Learn more at prisms.org
Do I Need To Register If I Don't Walk/Run?
Yes, if you are planning on attending this event, we kindly ask that you would register. This helps us plan accordingly.
Do I Need to Run?
Nope! This event is for the whole family and you can walk or run your commitment any way you like!
Can I Sponsor this Event?
Interested in becoming a sponsor? We have sponsorship opportunities for this and other future events. Email us at smschampions24@gmail.com for more information and details.
I Have a Question
Email us at smschampions24@gmail.com with any questions. We’d love to help.
©2024 SMS Champions, All Rights Reserved. Made with ♡ by Jakob Haymond.